The Connecticut Epilepsy Advocate Foundation proudly serves all of the Fifty States in America, along with all of Connecticut's one hundred and sixty-nine cities and towns, in the eight counties of Fairfield, New Haven, Middlesex, New London, Litchfield, Hartford, Tolland, and Windham.
Our website has just over twenty pages. with topics like About Us, Testimonials, Support Groups, Information, Medic Alert, Social Security Disability Insurance, Prescriptions, Payments and Donations, and Contact Us, just to name a few, so please take a look at the tabs and scroll around to find the ones that would be most helpful to both you and those you know.
Our organization will interact with people living with Epilepsy to help them cope with this insidious disease in any way possible. If there is something we do not know (and trust me, we do not know it all) we will do our best to find someone who can provide the needed information. Each of us here just wants more people to become "Aware About Epilepsy"
We presently have four Support Groups, in Bristol, Milford, Waterbury, and Stamford. We are looking to launch even more, so if you would like to volunteer to run a Support Group in your area, please let us know, and we can determine if people in your area would benefit from a more local group. (We want the groups to be spread across the state, not too close to one another).
Never facilitated a group before? Don’t worry, we will train you on how to run your group. You will only be donating approximately six hours a month of your time; and you will be making more people "Aware About Epilepsy."
Did you know that The Connecticut Epilepsy Advocate Foundation has been featured on many TV stations? The list includes News 8, Fox 61, NBC Connecticut, News 12 Connecticut, WFSB 3, Lifetime Network, and Public Access Channels. Stories have been published in The New Haven Register as well as 26 other daily and weekly papers, including The Connecticut Post and the other Hearst Newspapers: The Stamford Advocate, Greenwich Times, Darien News, The News-Times, The Hartford Courant, The Republican-American, The Stamford Times and The Hour, The Milford Mirror as well as Milford Living Magazine. We are also on Facebook, Twitter, Instagram, and YouTube, each of which will let you learn even more about us.
The Connecticut Epilepsy Advocate Foundation is a recognized
501 (c) (3) Non-Profit Organization.
It is the objective of the Connecticut Epilepsy Advocate Foundation to offer transportation and hospitalization information. Assistance to students with special needs by being an Advocate. Working with Veterans with Epilepsy-related disorders, their prescriptions, and issues unique to the combat veteran, male or female - including PTSD, Agent Orange exposure, Military Sexual Trauma, brain trauma, etc.
We offer Epilepsy Consulting and training to learn about the facets of Epilepsy and how to treat those with it.
When people cannot afford them we will pay for their Medic Alert bracelets, including membership, and the Advantage Plus Plan, and we forward the client’s I.C.E. (In Case of Emergency) which is very informant information to their account. When people are in need, we often give them gift cards from grocery stores such as ShopRite, Stop & Shop, or Big Y.
We also offer contacts and links to companies that manufacture anti-seizure medication and assistance with anti-seizure medication. We highly recommend everyone whether they have Epilepsy, or any medical condition, please place their prescriptions on a ninety-day mail-order program and have their doctors submit new prescriptions in mid-November so they will carry over to the next year. When deemed necessary, we offer guidance for people who need seizure-alert dogs.
HB 5450 An Act Concerning the Palliative Use of Marijuana
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Making people Aware of Epilepsy in any way I can is a self-fulfilling prophecy for me.
Robert A. Fiore, Connecticut Epilepsy Advocate Foundation
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