The Our web site has just over twenty pages so please scroll and find the ones that are helpful to both you and those you know.
Our organization will interact with people to help them in any way we can about Epilepsy and if there is something we do not know (and trust me, we do not know it all) we will do our best to find someone for them to speak with who can give them the information they need. Each of us here just want more people to become "Aware About Epilepsy".
The Connecticut Epilepsy Advocate has been featured on the following TV stations: News 8, Fox 61, NBC Connecticut, News 12 Connecticut, Lifetime Network and Public Access Channels. Stories have been published in The New Haven Register as well as 26 other daily and weekly papers. The Connecticut Post and the other Hearst Newspapers: The Stamford Advocate, Greenwich Times, Darien News, The News-Times, The Hartford Courant, The Republican-American, The Stamford Times and The Hour, The Milford Mirror as well as Milford Living Magazine.
On January 29, 2016 we met with State Senator Terry Gerratana and State Representative Matt Ritter, the co-chairs of the Public Health Committee, about a Bill proposal. In speaking with them they showed a positive interest in the Bill, but explained that it would not be exclusive to Epilepsy; other medical conditions would be addressed, which was fine with me. Then on Sunday, February 14, 2016 Jonathan A. Harris, Commissioner of Consumer Protection, contacted us and after making a few changes to it he explained that the Bill could not be called “Cannabis Oil for Children.” We were just happy to have a Bill, so we accepted the name they chose, and the following was introduced: House Bill 5450 - AN ACT CONCERNING THE PALLIATIVE USE OF MARIJUANA. We are proud to say it passed on Friday, April 29, 2016 at 11:43 pm
HB 5450 was brought up at 8:08 pm. I just followed every moment of it feeling everything from admiration, interest, disgust, fortitude and perseverance because I believed the Bill would pass. Then finally at 11:43 pm HB 5450 passed. Although this Bill was not exclusive to us, to say I was feeling ecstatic, elated and dam proud is an understatement. The bottom line is, it felt so good that we were able to make this come to fruition and then pass. Yes, the 3 hours and 35 minute process was long but truly worth it.
It is the objective of the Connecticut Epilepsy Advocate, Inc. to offer transportation and hospitalization information, contacts and links to companies that manufacture anti-seizure medication and assistance with anti-seizure medication and seizure alert dogs for people living with Epilepsy.
The Connecticut Epilepsy Advocate, Inc. is a recognized 501 (c) (3) Non-Profit Organization.
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Making people Aware about Epilepsy in any way I can is a self-fulfilling prophecy for me.
Robert A. Fiore,Connecticut Epilepsy Advocate
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